The Stroke Rehabilitation Center (SRC) of Southeast Wisconsin’s Community Academic Advisory Board (CAAB) provides a platform for partnership and two-way communication between clinicians, researchers, and stroke survivors and their support networks. This patient-centered approach provides meaningful support and direction for the SRC, ensuring the direction of research, training and education meet the lives and needs of stroke survivors. The CAAB promotes integration of research findings into the clinical care, and daily lives of stroke survivors through community education.
I am the daughter of a stroke survivor. My mom had a stroke in June 2015. My sister and I were her primary caregivers for a year and now act as support to my brother who is now the primary caregiver. My participation in the SRC advisory board is to provide feedback based on experience from a caregiver’s perspective and the challenges of overseeing continued care is provided and that available medical benefits are accessed and utilized.
I'm a stroke survivor. Three weeks after my 46th birthday, I had a stroke, which happened on December 12, 2015. I came home from the hospital the day before Christmas Eve. I realize that I had not finished my Christmas shopping. But whatever I did get for everyone was what they are getting under the tree from me. My Christmas wrapping skills were a work of 'art'. I am married with two adult children. I joined the SRC Community Academic Advisory Board (SRC CAAB) because I felt it was important for me to be a part of some bigger than myself. I want to make a change (or add to) about how stroke information is told to people (the stroke survivors and caregivers). Having a stroke is like finding out you have cancer, you’re surprised at the news, but you know you have to fight to stay alive. Whatever you do, don’t give up hope, your laughter, or your willingness to live because there is more for you to see and accomplish.
I am a 32-year stroke survivor. Since I was given the gift of life, I feel compelled to share and teach students about my experiences and any tips I have learned. I have also gratefully discovered the benefits of volunteering for research, which I have found to improve my own abilities. I joined this group to again share, and also learn from others.
I am the support system for my wife, who is a 32-year stroke survivor, reminding her and helping her in her home exercises. I joined this group to share my perspectives from our life experiences to help the advisory board.
I am so grateful to be a part of this group. Right away I felt comfortable with everyone in the group. While our specific stories are different, there is an inherent understanding between all of us that we do not need to explain. And that is very refreshing!
Individuals who have sustained a stroke can have significant functional limitations impacting their quality of life. Through the Stroke Rehabilitation Center, I see great potential to collaboratively work together to minimize stroke related disability.
As Director of Stroke Rehabilitation and Spasticity Management at the Medical College of Wisconsin and Froedtert Hospital, I see first-hand the difficulties that patients with sensorimotor impairments face. My research in the areas of spasticity management and motor recovery have given me a better understanding of the complexities of normalizing movement after a stroke, SCI, TBI, CP or MS. My clinical expertise includes over 20 years of management of stroke survivors with loss of motor control and spasticity. I have published extensively on the assessment and treatment of spasticity, including use of botulinum toxins and intrathecal baclofen.
The Stroke Rehabilitation Center (SRC) is critical to our research because it brings new technologies and therapies to the clinic and into the community. As researchers, we search for ways to have an impact on people’s lives. We have the ability to create new devices and therapies to help people, but they are meaningless unless we connect them to the community. Community interactions also provide us the inspiration for new ways to solve the problems of stroke survivors. It is key to making a difference.
If you are a stroke survivor who would like to join our CAAB to provide support and direction for the SRC, please complete the form and we will contact you to discuss your interest.